Project cure the kids 

Supporting Children with Rare Diseases

There are no approved drugs to treat 95% of rare diseases. The science is there, but on average it takes 15 years and hundreds of millions of dollars to develop effective FDA approved treatments. 30% of children with a rare disease will not live to see their 5th birthdays. Project Cure the Kids is building a sustainable solution to help children with rare diseases in their race to find a cure by providing financial aid for medical expenses and research. 

Join the Fight Against Rare Childhood Diseases!



A Cure for Ellie is a nonprofit dedicated to raising awareness and funds for research into LBSL, a rare genetic disorder that affects the brain and spinal cord. In 2016, Ellie McGinn launched a social media competition to rebrand the tongue -twisting name of the disease (Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation).  Ellie settled on a name that would make newly diagnosed patients "feel good about themselves" - The Awesome Disease!


Believe in A Cure is a nonprofit dedicated to finding and funding the best scientists in the world to develop therapies that improve the lives of FOXG1 patients. Ilissa and Scott Reich started Believe in A Cure to save their son, Eli, who suffers from FOXG1 Syndrome – a devastating condition that impacts brain development.

Why It Matters

50% of patients with a rare disease are children.  Project Cure the Kids is building a sustainable solution to help these kids and their families in a race against time to find a cure.


The Problem

Treatments for rare childhood diseases are expensive or non-existent.  

Our Impact

We work with small non-profits whose mission is helping kids with rare childhood diseases.

How You Can Help

Your $15 a month helps kids and their families in the fight against rare childhood diseases.

A sustainable solution

100% of your monthly donation goes directly to fighting rare childhood diseases.

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